JACKSONVILLE, Fla. -- While walking around Disney World four years ago Bryce Williams told his mom Michelle that something was terribly wrong.
"He just said 'I can't walk anymore. Get me a wheelchair or a stroller'," Michelle said.
At the age of 8, Bryce was diagnosed with bone cancer.
Now, four years, 18 rounds of chemo and one leg amputation later, Bryce is doing great.
He and his family are joining 36 other children and their families from around the nation to tell Congress how much medicaid means to them, especially long term.
"His long term care, we are going through five prosthesis a year at $35,000 each and if we weren't able to subsidize that he couldn't get the care he needs."
According to the Children's Hospital Association, 32 million children like Bryce rely on Medicaid to access care.
Wolfson's Childrens Hospital President Michael Aubin says healthcare coverage for children, especially those with special needs, is at a critical crossroads.
The Williams family hopes they can help congress understand the real need for families to have access to medicaid... and hopefully save the program from budget cuts.
"If we didn't have Medicaid, it would have been a real burden to my family," Bryce said.